HIV and AIDS

What is HIV?

HIV stands for Human Immunodeficiency Virus. This is a virus that, over time, weakens and damages a person’s defence system (the immune system).  

Most people with HIV will look and feel healthy, so you cannot tell who has the virus and you can pass on HIV without even knowing you have it.

Over a period of time as the immune system is weakened it becomes susceptible to a range of illnesses (often called Opportunistic Infections), that someone with a strong immune system may be able to fight off. 

Many people are prescribed anti HIV treatment (often called anti retrovirals) to help keep the HIV infection under control.

What is AIDS?

AIDS stands for Acquired Immune Deficiency Syndrome. It is sometimes called Advanced HIV disease or infection. This is a medical term to describe a collection of very specific illnesses or cancers that occur when a person’s immune system is unable to fight infection due to HIV damage. People do not die of AIDS but rather from one of the illnesses that develop as a result of a damaged immune system

Although today there is no cure or vaccine for HIV, with good treatment people with HIV are able to lead healthy normal lives.

How do you get it?

HIV is a blood-borne virus - that means it is reproduced in your blood cells. It is not easily passed from one person to another as it is only found in certain body fluids and for infection to happen you need:

  • to come into contact with the particular body fluid of an infected person and; 
  • this needs to get into your bloodstream

What body fluids do I need to consider?

  • Blood
  • Breast milk
  • Mucus (Thick Fluid) in the rectum (back passage)
  • Seminal Fluid and pre cum
  • Vaginal fluids including menstrual fluids

How could I get infected?

  • By having vaginal or anal sex without a condom with someone who is HIV positive
  • Sharing needles, syringes or drug injecting equipment with someone who is HIV positive.
  • An HIV positive mother can pass the virus to her baby during pregnancy, during delivery or through breastfeeding. (The chance of this can be reduced through the use of anti retroviral drugs).
  • Through blood transfusions or organ transplants. (A large number of countries including the UK now test the blood before use).
  • In some cases through oral sex when there is poor mouth hygiene.

Testing for HIV

The only way to know for sure is to have an HIV test. Some people might develop flu like symptoms such as a rash on the chest, diarrhoea, swollen glands, or fever a few days or weeks after infection. However many people infected with HIV have no signs and symptoms at all. As a result a significant number of people in the UK do not know that they are infected with HIV.

There are a number of tests for HIV, they include blood tests, saliva tests and pinprick tests. All of them are looking for HIV antibodies that your immune system develops to fight the virus when HIV enters your body.  It can take up to three months for there to be enough antibodies to show up on an HIV test. This is sometimes called the window period. .

If the test results come back and no antibodies are present, you are said to be HIV negative.

If antibodies are found on the saliva or pinprick test you will have a blood test to confirm.  If antibodies are shown on the blood test, then you are said to be HIV positive and this means you have HIV.

Recently Diagnosed

Being diagnosed with HIV will be one of the most significant events in your life. It’s very difficult to predict exactly what emotions and feelings you’ll experience in the first few hours and days after finding out you have HIV, as these vary so widely from person to person. However, commonly reported reactions include feeling numb, frightened, upset, tearful, desperate or angry - although it should be noted that other people have said they were relieved to have finally found out.

Finding out that you are HIV-positive puts you in a position where you can start to take steps towards looking after your health. Although there’s no cure for HIV there are treatments that mean that people with HIV can live much longer and healthier lives. The sooner your HIV infection is diagnosed, the sooner you can receive appropriate medical care.

There is a lot of information and support available for people who are have recently been diagnosed diagnosed with and are living with HIV.

Organisations, such as Positive East, provide one to one as well as group support for people who are newly diagnosed. They can help support you by answering your questions.

Do I need to tell anyone that I am HIV positive?

This is up to you. If you decide to tell people, you might like to ask yourself:

  • Who NEEDS to know?
  • What is the benefit to you and or to them by revealing your status?
  • How might it affect your relationship with that person?

The health advisor, clinic nurse or other professional in the clinic will be able to talk to you about telling people. They can also give you advice on having children, safer sex practices (ways of reducing the risk of HIV transmission) and other ways this condition might affect your life.

Treatment

It is recommended that all people who are diagnosed HIV positive should have regular monitoring and check ups. This allows the doctors to see how well your immune system is doing and if you are developing any illnesses or infections.

Not everyone who is HIV positive needs to go onto anti HIV treatment. People usually start these when their immune system has been weakened and needs extra support.

Is there any treatment I can take immediately if I think I have just come into contact with HIV?

If you are worried that you have been exposed to HIV within the last 72 hours then taking a short course of anti-HIV drugs may help to prevent infection.  This is known as Post Exposure Prophylaxis or PEP.  You can go to a sexual health clinic or an A&E department and the doctor or nurse will ask you some questions and assess whether or not the treatment will be of benefit to you.

 

More information

The following can provide more information on HIV or living with HIV:

Living with HIV produced by the National AIDS Manual.

Local HIV support groups

Jewish Action and Training for sexual health 

JAT, is the only organisation in the UK providing sexual health and HIV awareness programmes for the Jewish community and support for Jewish people living with HIV.

Website

African Health for Empowerment and Development (AHEAD)

Aims to make a major contribution towards achieving equality of access to health and social care services for Africans, refugees and asylum seekers in the UK. Our services major in the field of HIV/AIDS and sexual health.

Website

Health and wellbeing website from the Gay Men’s Team of Positive East.

We provide services for all men who have sex with men (gay, bisexual and those who do not identify as gay) in the East London area.

Website

Himat

The group which provides emotional and practical needs of South Asian gay, bisexual men and men who have sex with men.

Himat meets on the third Tuesday of the month in a Central London location from 6.00pm to 9.00pm.

Kaleidoscope

Positive East has started a group for black gay, bisexual and men who have sex with men, regardless of HIV status.

The group will meet on Tuesdays, once a month and is aimed at Black men of Caribbean and or African heritage. 

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Yellow condom

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